How do I access the Register? Physicians or other health care workers who are responsible for patients with PID may apply for Approved Access to the Register. Approved access enables you to provide information on patients (subject to their consent), and to receive constantly updated summary data reports from the Register. Reports include Registrations by Diagnosis, State by State updates and Immunoglobulin usage. Any Physician who is aware of an unregistered patient living with a PID in Australia or New Zealand (or suspects that they might not be registered) is strongly encouraged to apply for access. Ongoing surveillance is vital to the success of this project. |